Last edited by Nadal
Tuesday, August 4, 2020 | History

5 edition of Protection of personal data used for scientific research and statistics found in the catalog.

Protection of personal data used for scientific research and statistics

Recommendation no. R (83) 10

by Council of Europe.

  • 29 Want to read
  • 21 Currently reading

Published by Manhattan Pub. Co. [distributor] .
Written in English


The Physical Object
FormatUnknown Binding
Number of Pages23
ID Numbers
Open LibraryOL12947484M
ISBN 109287103178
ISBN 109789287103178

1 Introduction. Data protection and privacy rules for research are derived from general law on these subjects. Some countries have a fairly clear and central act (e.g. Swiss Federal Action on Data Protection, others (like the UK) have a rather messy central act and others (like the US) did not manage. Most acts also address research. Event report: The impact of the General Data Protection Regulation on the use of personal data for science ISC ǀ Brussels, 8 May 3 The third session dealt with the use of (sensitive) personal data for health research.

Where personal data are processed for scientific or historical research purposes or statistical purposes, Union or Member State law may provide for derogations from the rights referred to . Researchers must be aware of the Data Protection t other sub-sections there is a useful section containing Data Protection Principles.. Personal Data. Research projects which gather or use information about living individuals must meet the requirements of the Data Protection .

This includes data breach exercises, privacy by design technologies, RFID deactivation, and data protection for smart metering systems. European Data Breach Exercise. Most cyber-crime start with personal data stolen, collected on the fly in the network or from data . The revision to Circular A does not give a scientist the right to obtain research data from a colleague unless the data has been publicly and officially cited by a Federal agency in support of an agency action that has the force and effect of law. This does not promote the traditional role of data sharing in scientific research.


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Protection of personal data used for scientific research and statistics by Council of Europe. Download PDF EPUB FB2

Get this from a library. Protection of personal data used for scientific research and statistics. [Council of Europe. Committee of Ministers.]. Get this from a library. Protection of personal data used for scientific research and statistics: recommendation no.

R (83) [Council of Europe. Committee of Ministers.]. Article 16 (Research/Statistics) is the vital article for health research. It allows that sensitive personal data may be processed for research if the processing has been approved by the Data Protection Commissioner on the advice of a research Cited by: 2.

Because personal data processing and the use of sensitive personal data 12 such as genome-based information are crucial for the advances of health research activities such as clinical research and translational research, for practicing whole genome sequencing, for research biobanking or the creation of research databases, this article describes the main news 13 or specifications of importance concerning scientific research activities Cited by: Personal Data Protection – Research Exemptions.

Data for research purposes – Specific exemptions from 8 general principles. The Act provides certain exemptions from the 8 principles for research data. They are: • May be used for a purpose other than that for which it was collected provided it is a research.

personal data. The Data Protection Act (DPA) covers how personal data should be processed. Personal data is any information that identifies a living individual, including opinions about that individual and/or any intentions a data controller has towards that individual.

Personal data collected and used for research File Size: KB. The main challenge for research is to use and share the data, and at the same time protect personal privacy. In order to ensure respect for data protection and privacy, the EUI has adopted a Data Protection Policy1 that must be respected by all EUI members and which is inspired by the EU data protection rules.

Data which cannot be linked to an identifiable living individual is not personal data, as defined by the DPAand thus in principle falls outside the DP regime. However, until data is anonymised, it will be considered ‘personal data’ for the purposes of the DPA Additionally, certain types of research (eg data mining and matching) may result in anonymous data.

There are many good books on statistics, but if you’re looking for books on statistics that are good for data science, I recommending looking for books that tie in some sort of programming. Addressing key issues for researchers when collecting, storing, sharing, archiving or deleting personal data.

Research data containing ‘personal data’ will be subject to UK data protection. The future data protection package includes a General Regulation and a Directive on the protection of individuals with regard to the processing of personal data by.

concerned with scientific research and statistics. Appendix to Recommendation No. R (83) 10 1. Scope and definitions The principles and guidelines in this appendix apply to the use of personal data for scientific research and statistics in both the public and private sectors, irrespective of whether such data.

The EU General Data Protection Regulation (GDPR), along with the new UK Data Protection Act, will govern the processing (holding or using) of personal data in the UK.

Although the new regulations haven’t been designed specifically for research, we’ll need to make some changes to research practice. (In our Data Standards we use Data to mean: all scientific data that is typically used for our company’s purposes (eg.

genetic, genotypic, phenotypic, eQTL data, and associated data, whether whole genome sequences, exome sequences, individual level data, human mutation, summary statistics, or annotated data. 1 The processing of personal data for archiving purposes in the public interest, scientific or historical research purposes or statistical purposes should be subject to appropriate safeguards for the rights and freedoms of the data.

The only amount of personal data that should be collected for the research is the minimal amount needed to insure a proper sampling of the population. Personal identifiable information should not be collected nor maintained unless absolutely necessary. Research.

@TheGenevaAssoc BIG DATA AND INSURANCE: IMPLICATIONS FOR INNOVATION, COMPETITION AND PRIVACY The Geneva Association File Size: KB. Data protection 4 The issues of privacy and personal data protection have frequently been in the news in recent years, especially in the context of social networking, consumer profiling by File Size: 1MB.

personal data for all types of research, the conditions that need to be followed and the associated data subject rights; and Assess the implications of the different legal grounds for statistical and/or scientific research. This data protection guidance is provided as general information for research.

The EU General Data Protection Regulation (GDPR) and the UK Data Protection Act govern the processing (acquiring, holding, using, etc.) of personal data in the UK. Although the new legislation has not been designed specifically for research. Calculating the statistics for a scientific research experiment uses both descriptive statistics and inferential statistics measures.

Descriptive statistics describe the data and samples collected, such as sample averages or means, as well as the standard deviation that tells the scientists how the data .The following is a brief overview of the Principles of Data Protection found in article 5 GDPR: Lawfulness, fairness, and transparency: Any processing of personal data should be lawful and fair.

It should be transparent to individuals that personal data concerning them are collected, used.Personal data may be stored for longer periods insofar as the personal data will be processed solely for archiving purposes in the public interest, scientific or historical research purposes or statistical purpose (storage limitation) Article 5 Principles Personal data .